This blog post was written by Sabrine Elouali as part of a series to raise awareness of mental health issues. Sabrine has Obsessive Compulsive Disorder and anorexia and writes about how this has affected her life. You can find Sabrine on Instagram.
Be honest. Have you ever said you’re “so OCD” about something? Or perhaps that seeing a messy room triggers your OCD? If you stopped and sat down with a piece of paper, could you actually write a description of what OCD is? I can guarantee that pretty much 100% of people, if asked, wouldn’t be able to. In dedication to Mental Health Awareness Week, I am here to share my experience with OCD and how this mental illness has and continues to affect my life.
OCD stands for Obsessive Compulsive Disorder. It is categorised as an anxiety disorder, so sits amongst Generalised Anxiety and Phobias. The name of the illness itself is quite self explanatory. The sufferer has obsessions, which are patterns of overthinking and worries that can surround a multitude of topics. The most common that are identified when diagnosing OCD are: Contamination (fear of germs/dirt), Harm (fear you are a danger to yourself or others) and Checking (fear of unlikely disaster based on perceived negligence to your surroundings) But there are many other single forms as well, and more often than not, these categories tend to overlap, with individuals experiencing more than one single obsession. The sufferer then also has compulsions. This is a far more broad area of the illness, and is hard to summarise the main compulsions that are participated in. But the majority centre around repetition, so repeating certain behaviours/actions/compulsions in order to relieve anxiety. Some examples include: Repetitive hand washing, Repetitive asking for reassurance and Repetitive locking/unlocking of doors. Again, this is very brief and compulsions can spread to tens if not hundreds of different behaviours that cause the sufferer to become stuck.
I thought it was important to share what OCD actually is before I shared my story with it. I have with Anorexia and OCD, both of which started fairly close to each other, but my Eating Disorder preceding my OCD by around 3-4 months. To have co-morbid diagnoses like these are common, but not often talked about. I am still struggling with my Mental Health 7 years on from initial identification. It is not an easy thing to treat, and comes with immense challenges and difficulties. I’ve had hospital admissions for both of my illnesses in the past, and I’ve also had community treatment. Currently, I am technically under adult services in my community, but am not receiving therapy due to its ineffectiveness and am waiting on a private OCD specialist hospital referral.
So how does OCD affect my life? In all honesty, I think a better question would be how doesn’t it. My OCD consists of intrusive thoughts and images that are focused on a fear I have. This fear is an extremely terrifying and anxiety provoking thing for me and so I don’t feel comfortable sharing what it is. However, I will still try to be as detailed as I can. As well as the constant ruminations in my mind, I exhibit repetitive compulsions. Anything for me can become a ritual/behaviour. Walking up the stairs so steps are repeated up and down, turning a light on and off, touching a door handle and not being able to let go.
These are just a few that I do daily, and so it is easy to see why I am pretty much housebound and cannot go out to do simple routine tasks that would be required in a normal life. Besides the external struggles that my OCD presents me with, we have to remember it’s a mental illness, and my internal mental struggles are just as difficult, if not a lot harder than the outward compulsions people can see. Constantly having thoughts and images flashing and replaying in my head all day of my fears. Like watching a horror movie that just doesn’t end. You watch it again, knowing what to expect, but still end up just as scared as the last time. Unbearable anxiety and living on edge all the time. Fighting to convince yourself of the logic you know is real but being deceived by the irrationality of OCD. Knowing that nothing will happen if you don’t repeat a wash/check etc. but feeling so engulfed in your thoughts and fears that you question what is real.
I suppose the next question would be, if I can’t do normal things, what can I do? Unfortunately I lost a part time job I had for two years that I enjoyed due to my OCD struggles. After a final managers meeting with 2 senior staff members and a gruelling 45 minute waiting time for a decision, it was concluded that “there was nothing more they could do” as it is “a business”. As much as I kind of knew that answer was coming, I cried in front of them as I handed over my locker key and staff discount card. It was a hard day, and was a big catalyst to my illness deteriorating further. As well as that, because my OCD is so severe, I’ve missed out on university. I’ve thought about the possibility of distance learning but the degrees are so limited in choice, and I’d rather not spend energy and time on something I’m not truly passionate about. At this point, I’m not sure what I’ll do career wise. My love of poetry and writing in general has me keen on blogging or journalism of some kind. But my connection to mental health draws me to want to work in services with people like me. I’m hoping I’ll find a way to do a mix of both as that’s where I think my heart lies.
Thank you to Sabrine for sending me this post. It is easy to see how OCD can so drastically affect your life, and talking about it will make people more aware of the realities of living with a mental illness. If you suffer too, know that you are not alone.
If you’d like to get in touch to write for this series please email firstname.lastname@example.org. Please hashtag #MentallyWealthy in any Instagram/twitter posts and spread the word!